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Hi my name is Aspen, I was born August 16th 2016 weighing 6lbs 7oz  in Thunder Bay, Ontario 

My family was so excited to meet me and bring me into the world. 

I was a very happy baby girl and I still am. 

As the months went by I learned to say momma and dada, I played a little with my toys and used my hands to eat my food, no matter what I always had a smile on face.

As time went by my parents started to notice that I wasn't doing some of the things other children my age were doing and then all of a sudden the night tremors started, At first when I had a night tremor my mom and dad were not sure what exactly had occurred as after a few minutes I was fine, the tremors became moe frequent and at the end of September 2017,  mom and dad were worried and took me to see  a doctor. 

The doctors did lots of tests and made a few comments on what they thought was the cause, but no one was really certain. 

After having a genetics test done and waiting for what felt like months my mom and dad received the call on January 8th 2018 from the doctor Letting them know the results were in. 

On that day my parents learned that I have been diagnosed with Rett Syndrome,

Many of you may not know what this is all about as it is quite rare and mainly prominent in girls; let me tell you about it: 

Rett syndrome is a rare genetic neurological and developmental disorder that affects the way the brain develops, causing a progressive inability to use motor, eye, and body skills and movements along with speech. There is no cure for Rett Syndrome but there are ways to help me with progress. 

my mom takes me to physico therapy on a regular basis to make sure that I work my muscles and stay as strong as possible, she also works with me at home and my daycare workers do the same. 

Everyday for us is a challenge and we often don't  know what the next challenge will be. I work hard everyday to be and do the best I can. I am the happiest sweetest most loving and smart little girl.

Everyone who meets me will tell you this. 

I have a long road ahead of me.

But I will make through every challenge with the support I have from such a devoted family and  the fact that I am a fighter who will keep on pushing forward . 

Thanks for listening to my story. 

To learn more about Rett Syndrome you can visit 





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