December 25, 2010 was a beautiful day for us, not only because we were celebrating Christmas the day of our Savior's birth but also because it was the day our beautiful, little sunshine was born! The joy my granddaughter brought into our lives was unexplainable. Just looking at her beautiful little face and counting all her tiny little fingers and toes gave us the reassurance that she was a normal and healthy baby. Why wouldn’t she be? There were no telltale signs of any abnormalities throughout her mother's pregnancy. About a year and a half later, the cruelty of Rett Syndrome got a hold of her as we noticed a slow regression of her motor skills. She slowly lost her ability to walk or even stand up on her own. When she enjoyed playing with her toys we noticed she was having difficulty grasping or holding on to them. At first we were in denial as we chose to believe the Dr. that would say every child develops at different stages. Maybe it was denial on our part but it is not an easy thing to accept. Her babbling and her use of little words such as mama when she wanted her mommy and papa when she was hungry or titi when she wanted her bottle may not be a big deal to some but how we miss those little things that helped her communicate her wants and needs. She went from an independent toddler to a child who regressed and became completely dependent for her every move. My dreams of putting her in ballet or dance classes or any other physical activity for that matter were no longer within reach. My dream of ever seeing her dance, was shattered. But even with all the struggles she continues to have, Destiny is a very happy child. And her smile lights up every room she is in. Every once in a while she will suddenly burst out in laughter. A laugher that every parent can appreciate, if only we knew what caused her to laugh. Destiny requires 3 types of therapies: physical, occupational and speech. And these are done twice a week. But Destiny also needs a cure for this awful illness called Rett Syndrome. She can't wait decades for a cure. She needs help now. We need your help to raise the funds so she can achieve the life that every child deserves. Please join us in our fight to cure Rett Syndrome by making a donation in her honor.
Thank you for visiting my page! I am excited to share about my journey with Rett Syndrome. Check back soon for my story!