Courtney was born on July 3, 2005 in Carrollton, Texas. Courtney is such an amazing little girl! She has a smile that can light up any room! Courtney was diagnosed with Rett Syndrome (mutation R255X) a little after her third birthday and began to have seizures along with other regressions a little after her fifth birthday. She also has extreme GI issues, borderline Long QT, and scoliosis to name a few. Rett Syndrome has taken away many things from our little girl like running, talking, and feeding herself, but it has not taken away her loving spirit and infectious laughter. She is our hero! She is smart, she is brave, she is funny and she teaches us to have so much patience and live life to the fullest. Our lives are full of love because of her.
Courtney is just like most twelve year old girls. She loves hanging out with her friends and family, watch tv, and the one word she does say "Yeah" she blurts any chance she can get (mostly when she is being a smarty pants). She loves school mostly because of her sidekick teachers aide Mrs Mindy. She believes in Courtney and strives to help her succeed in everything she does. She also loves to read, swimming, go shopping, do girly things, loves boy bands, loves butterfly kisses, loves all things food (except brussel sprouts - Yuck!) and loves being outdoors. She communicates with her eyes with a communication device (Tobii) that allows her to have a voice via eye gaze. What a blessing this has been in our lives!
Courtney also has the best big brother a girl could ask for -- she loves spending time with her bubba Deven. He makes her laugh, smile and they have the best conversations without having to say a word. We also can not forget about her friends, grandparents, cousins, aunts, uncles that Courtney also adores. Without them, Courtneys Army would be incomplete.
As a family we are dedicated to raising awareness and money for Rett Syndrome research and know that if we all work together, a cure will be found!
100% of every dollar donated to this page goes to Rett Syndrome Research (rsrt.org) & 96% of every dollar RSRT receives funds critical research. Thank you for taking time to learn a little about Courtney!
My favorite quote "I thought that we would have to teach our daughter about the world, turns out we have to teach the world about our daughter. You see a child that can not speak, I see a miracle that needs no words."